5. Are there support groups for families with a child having CHARGE Syndrome?
What I used:http://www.stepstn.com/nord/rdb_sum/550.htm#top1
Insights:There are several supports for families with a child having CHARGE Syndrome or for those who desire to know more. The National Organization for Rare Disorders, Inc. has many good sources to contact for finding more information on CHARGE Syndrome. Families and teachers can use these to help work with there kids by knowing more about the effects of the disorder.
Other helpful sources that I’ve found for families and teachers include the websites and organizations listed below. Check them out!
Family Village: A global community of disability-related resources
The Charge Syndrome Foundation
2004 Parkade Boulevard
Columbia, MO 65202-3121
(800) 442-7604 for families
(573) 499-4694 for professionals
|Contact Information: ||
If you'd like to comment or have further questions|
regarding this website please email me at